Living with Scleroderma: 3 Ways to Protect Your Skin This Winter

At Pacific Rheumatology Medical Center in Laguna Hills and Tustin, California, board-certified rheumatologist Dr. Behnam Khaleghi and our caring team offer expertise and compassion to help patients manage complex autoimmune conditions such as scleroderma.

Scleroderma affects at least 300,000 Americans today. Because it's a fairly rare disease, many patients who receive a diagnosis are surprised and confused about what measures they need to take to protect their skin. In our January blog, we're discussing three key ways you can do exactly that this winter.

How scleroderma affects the skin

People with scleroderma often experience skin thickening and tightening, which can become painful and intrusive. In fact, scleroderma translates to "hard skin."  

Roughly 95% of people with scleroderma experience Raynaud's phenomenon, a condition that occurs when blood flow to the extremities (fingers and toes) slows down, causing them to turn white or blue. This phenomenon is a response to cold weather, or, in some cases, to stress.

Between skin thickening, hardening, and Raynaud's phenomenon, people with scleroderma have some skin challenges to navigate at this time of year.

Moisturizer: Your skin's secret shield

Many people think of moisturizer in terms of beauty and skin enhancement, but it's much more than that for people with scleroderma. Your skin protects your body, but it needs its own layer of support, particularly during the winter, when the humidity is lower, and the air quickly draws moisture from the skin surface.

Using a high-quality, occlusive moisturizer is an easy way to do that. Occlusive moisturizers are thicker than ordinary creams and lotions. They create an invisible “shield” on the skin surface, preventing transepidermal water loss. Basically, occlusives are a powerful tool that can lock moisture into your skin and prevent it from evaporating. 

Occlusive moisturizers can also help improve absorption of other topical creams or lotions that you apply first. For example, Dr. Khaleghi may prescribe topical corticosteroids or another scleroderma treatment, and the occlusive moisturizer can help them absorb better. 

Applying moisturizer just before bedtime and wearing soft, breathable cotton gloves and socks can help seal in the moisture as you sleep.

Extra layers: Flexible skin protection

Cold air and wind do more than dry the skin. They can constrict blood vessels, which increases the risk of Raynaud's. Even brief exposure can trigger symptoms when you have scleroderma. We recommend dressing strategically.

Make sure you’re fully covered when you need to brave the colder weather. Layers are great for both inside and outside, making it easy to shed or add layers based on your comfort level. 

This is particularly vital in terms of protecting your hands and fingers. Wear thick, insulated gloves and thick socks when the weather is cold.

Daily habits changes: Easier than you think!

Small daily habits can have a big impact on skin comfort during winter. Some small habit changes to consider are:

Warm vs. hot showers

Hot showers may feel soothing, but they can strip natural oils from the skin and worsen dryness. Opt for lukewarm water instead, and limit shower time when possible.

Non-soap cleansers

Use gentle, non-soap cleansers made specifically for sensitive skin. Avoid products with alcohol, strong fragrances, or harsh exfoliants, as these can irritate already vulnerable skin.

Consistent hydration

Although you may not be as thirsty during the winter, staying well-hydrated also plays a role in skin health. Drinking enough water throughout the day supports overall tissue function and can help your skin better withstand environmental stressors.

Adding humidity to the air 

A humidifier can help restore balance, adding much-needed moisture to the air when it’s cold and dry. It can be helpful to add a humidifier to your bedroom, office, or anywhere else you spend extended periods of time.

If you're navigating the winter with scleroderma, we’re here to support you. Call Pacific Rheumatology Associates in Laguna Hills at 707-607-8912 or Tustin at 714-266-1458 to book your consultation with Dr. Khaleghi.